Spinal Muscular Atrophy - Fight SMA - PRWeb Press Release Group http://www.rsspad.com/rss2/16983.xml News and information about spinal muscular atrophy (SMA), the leading genetic killer of children under two. - Powered by PRWeb and RSSPad en xml@emediawire.com xml@emediawire.com 30 http://www.prweb.com/userfiles/200704/fightsmasmalllogo.jpg Happy Image http://www.prweb.com/ First Annual Fighter Mom Workshop to Support Mothers (and Others) Fighting Children's Diseases http://www.prweb.com/releases/2008/04/prweb835264.htm A special day-long workshop for mothers fighting diseases and health challenges that face their children, sponsored by Fight SMA and the Toy Industry Foundation, will be held on Friday, May 9, 2008, from 8 a.m. to 5 p.m., at the New York Palace Hotel in New York City. (PRWeb Apr 7, 2008)

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]]> Mon, 07 Apr 2008 07:00:00 GMThttp://www.prweb.com/releases/2008/04/prweb835264.htm Fundraiser Nets More Than $150,000 for Spinal Muscular Atrophy Research http://www.prweb.com/releases/2007/12/prweb576473.htm The fight against spinal muscular atrophy just received an infusion of money, thanks to participants in a recent fundraiser held by Fight SMA (http://www.fightsma.org). (PRWeb Dec 14, 2007)

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]]> Fri, 14 Dec 2007 08:00:00 GMThttp://www.prweb.com/releases/2007/12/prweb576473.htm Investigators to Meet at Summit to Advance Clinical Research for Spinal Muscular Atrophy http://www.prweb.com/releases/2007/09/prweb556756.htm With the recent introduction of SMA legislation in both the U.S. House of Representatives and the U.S. Senate to create a national clinical trials network for spinal muscular atrophy (SMA), the leading advocacy organizations are hosting a two-day summit to work toward reducing or eliminating barriers to development of the drugs that would be tested in that network. (PRWeb Sep 28, 2007)

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]]> Fri, 28 Sep 2007 07:00:00 GMThttp://www.prweb.com/releases/2007/09/prweb556756.htm Unique Auction Items to "Make Tracks" Toward Curing Spinal Muscular Atrophy http://www.prweb.com/releases/2007/09/prweb554806.htm Fight SMA (http://www.fightsma.org), an international nonprofit organization working to accelerate a treatment or cure for spinal muscular atrophy, is announcing the list of items available at the 5th annual SMAsquerade fundraiser. The proceeds from the sale of the unusual and exciting items will go toward research into SMA, the leading genetic killer of children under two. (PRWeb Sep 20, 2007)

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]]> Thu, 20 Sep 2007 07:00:00 GMThttp://www.prweb.com/releases/2007/09/prweb554806.htm Fight SMA Creates Directory of Diseases Benefiting From Spinal Muscular Atrophy Research http://www.prweb.com/releases/2007/08/prweb545410.htm Fight SMA, an international nonprofit organization working to accelerate a cure for spinal muscular atrophy (SMA), has created a new web directory of diseases that benefit from SMA research. (PRWeb Aug 9, 2007)

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]]> Thu, 09 Aug 2007 07:00:00 GMThttp://www.prweb.com/releases/2007/08/prweb545410.htm Disease Advocacy Program Relaunches for Mother's Day, Forming a Community of FighterMoms http://www.prweb.com/releases/2007/05/prweb525511.htm The FighterMom (http:www.fightsma.org/fightermom) program , developed by Fight SMA, is relaunching for Mother's Day Weekend 2007 as part of a focus switch from an informational site to a community. The new FighterMom Community will provide education, support, and advice for mothers who have become disease advocates against a disease or disorder affecting their children. (PRWeb May 11, 2007)

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]]> Fri, 11 May 2007 07:00:00 GMThttp://www.prweb.com/releases/2007/05/prweb525511.htm Fight SMA Provides Grant to PTC Therapeutics, Inc. to Support Research of New Treatments for Spinal Muscular Atrophy http://www.prweb.com/releases/2007/04/prweb519068.htm Fight SMA (http://www.fightsma.org) has established a research and development collaboration with PTC Therapeutics, Inc (PTC) to identify and develop a compound that can be used to treat spinal muscular atrophy. SMA is the leading genetic cause of infantile death, yet there currently is no treatment available. (PRWeb Apr 16, 2007)

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]]> Mon, 16 Apr 2007 07:00:00 GMThttp://www.prweb.com/releases/2007/04/prweb519068.htm Spinal Muscular Atrophy Fundraisers Successful in Birmingham and Atlanta, Thanks to Dedication of Volunteers http://www.prweb.com/releases/2007/03/prweb508351.htm Two fundraisers to benefit Fight SMA, held in different cities on the same day, were successful thanks to the hard work and dedication of the volunteer organizers. Fight SMA (http://www.fightsma.org) is a health - related organization dedicated to finding a treatment or cure for spinal muscular atrophy, a neuromuscular disorder that kills more babies and toddlers than any other genetic disease. (PRWeb Mar 2, 2007)

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